parents of special needs


Shining Boots, Shifting Staff and Book Clubs: 9-25-12

Thirteen Months and Twenty-Four Days: That is how long our daughter has lived in her new home. And today the Ability Beyond Disability team, along with the Connecticut Department of Developmental Services case manager, met with our daughter and her parents for her DDS annual review. The residential coordinator opened up the ceremonies by saying […]

The Red Couch Is A Year Old: 8-9-12

The Red Couch Is A Year Old: The Ability Beyond Disability services manager, mover and shaker of our daughter’s residential component, invited the two moms and the residential staff to lunch to mark a year since the ladies moved into their cozy duplex/CRS (Continuous Residential Support) on August 1 in Ridgefield, Connecticut. The atmosphere and […]

The Busy Life Of A Special Needs Adult: 6-25-12

Swimmingly: In the last six weeks our daughter’s special needs adult life has been going along swimmingly, pun intended. She participated in Connecticut’s Special Olympics aquatic state finals, including spending two nights in a Southern Connecticut State University dormitory. She received a medal for her excellent riding (her “seat” as they call it) at the […]

News, and a Special Opportunity for My Readers

Dear Readers, as you well know, it has always been my intention to use my journey as a parent whose special needs child was “aging out of the system” to help others who were not yet on that path, or even as perspective for those who were. This was primarily because there are few, if […]

A Humbling Journey with Warts and Blemishes for All To See: Part 2: 3-27-12

Jeez What An Adjustment: Since our daughter moved into her CRS on August 1, 2011, I have struggled to define the parameters of my role as mother in the new order. The fact that as of July 1, 2012 our daughter has become the responsibility of the State of Connecticut and a client of Ability Beyond […]

A Year’s Journey From All Sides Now: 03-26-12

All Sides Now: There is no easy way to end this series of posts on parenting adult special needs. Do I summarize, itemize, measure growth, anticipate challenge or celebrate accomplishment? Do I thank and applaud or alert and inform? Shouldn’t I be doing all of that? My hope is that I have done all of […]

Closing In On A Year & Building Trust: 3-12-12

March 30, 2011: In a little more than two weeks it will be a year since the first post on Parenting Adult Special Needs: One Day At A Time. Last week our daughter’s entire team of staff members from ABD (Ability Beyond Disability) and her DDS (Connecticut Department of Developmental Services) case manager sat down […]

Two Ladies About Town: 2-20-12

A Pekingese Named Malachy: Our daughter and I had a grand time in New York City last Monday and Tuesday. The Westminster Dog Show was a “hoot” including the “best in show” Pekingese” Malachy, who we were lucky to view in the toy group Monday evening. Our daughter compared him to a “walking mop” and […]

Heading To The Dog Show: 2-13-12

Westminster Here We Come, Woof Woof: Today our daughter and I head to Madison Square Garden in New York City to see the 136th annual Westminster Kennel Club Dog Show, a long awaited second visit to this country’s pre-eminent canine competition. And we are psyched. Our daughter has already previewed the Monday night line up […]

Leap Year: 1-30-12

Six Month Review: How symbolic that the Connecticut Department of Developmental Services (DDS) has scheduled our daughter’s six month review on February 29, 2012, Leap Year! It will be six months since the August 1, 2011 move to her apartment in Ridgefield that has become her adult home. Leap indeed. What has transpired in these […]