adult special needs


Two Moms Celebrate: 10-26-11

“A Celebration of Ability”: As planned, my husband and I met up after work at the Ability Beyond Disability annual meeting last night, aptly named “A Celebration of Ability.” Neither our daughter nor her apartment-mate attended, though there was an exhibit of their CRS (Continuous Residential Supports) replete with photos of the ladies. But it […]

We’re Getting There: 10-25-11

Patches: Our daughter’s patchwork quilt of an adult future is almost complete. Not a forever kind of complete, for life is always in motion and motion means change. But the last big patch to make up the initial assemblage is that vocational piece and this Friday, our daughter’s first day at ROAR, heralds the successful […]

Giardia and Feral Cats: 10-24-11

Smart Girl: I caught up with our daughter at last when she called me yesterday around 2:30 P.M. as I was on route with my son to help him move into his new apartment/closet on 15th Street in N.Y.C. The young lady surfaced at last to give me her view of her tour of ROAR, […]

Sick & Pissed: 10-23-11

Sick & Pissed: My visit to the “infirmary” yesterday revealed a young lady on the red couch, still stuffed up and anxious about her ROAR training, focusing mostly on the new vocational life skills staff person who has to train with her today at 11:00 a.m. I am typing this at 10:58 with the hopes […]

Tender Care: 10-22-11

TLC: Last evening hubby and I stopped by our daughter’s apartment after work to deliver her Vogue Magazine, The Quarterboard, Riverview School’s newsletter which included a photo of our daughter, and her Mucinex D. The young lady was watching the movie Julie and Julia, seated on her red couch in her pink Susan G. Komen sweat […]

Spirals Of Anxiety: 10-21-11

Halloween’s Haunt: Every year as the leaves drop and front lawns are bedecked with spider webs, dangling sheeted ghostly figures, and wondrous ghastly creatures, our daughter gets sick. By Halloween night or a few days later on her birthday, she is either on Zithromax (yes we have tried the naturopathic route) or at least Mucinex […]

No Answer, Not Much: 10-20-11

No Answer: I am not sure what activities were scheduled for our daughter’s vocational day today as neither she nor any of her staff have answered my calls. By next week I am hopeful that both placements, ROAR and Ridgefield Crossings will be in place. I know that her ROAR training is scheduled for this Sunday. […]

A Magical Combination & A Swimming Buddy: 10-19-11

Angelfish Rocks: Our daughter apparently had a mighty fine time at her first full-fledged Angelfish swim lesson last evening. Her ABD staff told me she worked well with her new swim buddy, a young gentleman of similar age who welcomed companionship in the pool. I am thrilled. They did laps and jumping jacks and whatever […]

Angelfish: 10-18-11

Swim Lesson At Last: Tonight our daughter will have her first semi-private swim lesson with Angelfish, and Cindy Freedman, the talented occupational therapist who welcomed our daughter as a volunteer last Spring. Cindy’s talents are known far and wide.  My fingers are crossed that our daughter will allow the Angelfish magic to take hold, and […]

Love Her For Who She Is: 10-17-11

Ronan: I had an idea for today’s post but dropped it this morning when I read Emily Rapp’s piece in Sunday’s New York Times, Notes From A Dragon Mom, about her son Ronan, eighteen months old, who has Tay-Sachs Disease. The article is painful, so I am not suggesting it to readers without a useful motive. […]